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83% funded
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My year on the dancefloor

How do you deal with a diagnosis of Parkinson's? Dancing is probably the last thing on your mind…

Parkinson’s & the Tango Effect is the story of an incredible year in the life of a woman with Parkinson’s. It began with a tango lesson and grew into an exploration of the healing potential of the dance.

Quirky, intimate and unashamedly literary, the book takes an unflinching look at the dark side but also at reasons to celebrate. It builds on research on the impact of dance on Parkinson's symptoms & takes it a stage further, with a behind-the-scenes record of private lessons and contributions from tango teachers. It documents the emotional and social benefits of the dance and its impact on the quality of life.

This book is my story, a story of learning to accept myself as I am but also refusing to be defined by Parkinson’s. It’s about how I found a way of living with illness that is liberating. It’s the story of an extraordinary dance, both exotic and accessible, its history, its music. It’s the story of what happens when the two come together. And it’s the story of a sustaining and enduring friendship.

Parkinson’s & the Tango Effect challenges our perceptions of disability. It is essential reading for those with a professional interest in dance and Parkinson's, and for researchers in the field. It's also a book for the ordinary reader, for those living with a chronic condition, and for the tango and Parkinson's communities worldwide.

Endorsed by

After 30 years as an English teacher in secondary schools in London, the north of England and Mexico City, the diagnosis of Parkinson’s proved my escape route, first to Anglia Ruskin University in Cambridge and then, via their Creative Writing MA and with the help of an Arts Council Escalator Award, to Argentina, to work on a novel exploring Argentina’s disappeared. Closer to home, I was also keen to explore our relationship with the natural world. As writer in residence at Cambridge University Botanic Garden, again with the support of Arts Council England, I produced a short story collection, Writing the Garden. At present I am working on The Station Master, a novel with a Bulgarian setting based on our responses to the refugee crisis. The Station Master won this year’s Adventures in Fiction Spotlight competition for debut novelists. I have had short fiction and non-fiction pieces published and am working towards publication of the novels. Meanwhile, Parkinson’s and the Tango Effect is the book closest to my heart. It has survived several major revisions and I am delighted that it is at last coming up for air with Unbound. A northerner by birth and habit, I have now made my home in Cambridge. For further information and a varied and substantial blog history go to my website.

FIVE: MAY

GRACE & FAVOUR

So what is it about tango that has the power to transform? Sceptics often add a second question: ‘Is it just..?’ Answer: no, it’s not just – the rhythm, or the music, or any one aspect which makes it different from aerobics or cycling, or even salsa or ballroom. I’ve read much of the research documentation, which describes and records the impact tango seems to have on an individual with Parkinson’s, and in some cases speculates about why and how this works. From my own experience, I have felt how each feature of the dance hits a particular Parkinson’s spot, with dramatic results.

Take grace. I’m no football fan, but watching an expert manage a ball for ten or twelve paces is infinitely satisfying: that combination of timing, poise, agility, fluency, dodge and weave, halt and go – wonderful, especially as these are skills I will never share. The grace of the tanguero is akin to that of the practised midfielder, except that I am not talking about professional dancers here. Of course, in performance, we enjoy these qualities, along with the complex motifs and patterns that ordinary mortals will never match. But what often draws that gasp of delight from those watching is a quieter moment, perhaps a hiatus before a step or a second or two where the balance of the follower is deliberately upset and then restored. Moments such as these are the stuff of the milonga. Any evening, almost every couple will glimpse perfection, that instant where everything comes together in the best possible way. And when you’re not on the floor yourself, look around: at every turn, amongst the clumsy and over-ambitious, fat or thin, skippers or gliders, shufflers or stalkers, the surprise of beauty.

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81% & COUNTING

Friday, 10 August 2018

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So it's official! 81% funded and trending on Unbound! Is this the home straight? I'd like to think so.

This week saw me present at the postponed PechaKucha Volume 15 'Fond Farewell' at Cambridge's Espresso Library: such a smart location and a very cool event - if somewhat intimidating! But the feedback from the 60-or-so-strong crowd was encouraging and you should be able to view my presentation…

SUMMER LOVING

Tuesday, 24 July 2018

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Blessed by the weather, the Grand Garden Spectacular Weekend was a spectacular success, and not just for the near-£2,000 injection of cash into the funds. For me it was a welcome chance to look away from the computer screen towards the human face of crowd-funding, a reminder of the kindness of strangers and the love and affection of friends. Too many to mention by name - some I didn…

PROMISES PROMISES...

Tuesday, 10 July 2018

Rosedale

With just 5 days to go until its live finale, the online Auction of Promises has produced a fantastically generous range of promises so far and over £700 in bids. I'm optimistic that with your support we will achieve our £2,000 target, which will make a big dent in the amount still  to raise for Parkinson's & the Tango Effect. 

My public profile has never been higher. Thanks again to the Cresset…

IN THE MIDDLE...

Friday, 15 June 2018

Mid-June, & not far off Midsummer, and I'm cheered (and intrigued) by the latest addition to the Auction of Promises: 'Five meters of home-made felt bunting in colours of your choice'. Cheered because otherwise progress is somewhere between very slow and stopped. 62% funded sounds very promising indeed - until you remember that it's been thereabouts for some weeks now. At times like these, it's hard…

FLAMING JUNE

Friday, 1 June 2018

Flaming june

More than an ironic aside on unseasonal weather, I discover that Flaming June is also a painting - a portrait of artist Frederic Leighton's muse, actor Dorothy Dene, wrapped in a frock which positively blazes passion, eyes closed in what looks like bliss. I'm wondering if she might have been a secret tango dancer. 

So, a fantastic achievement with funding so far - in the dark days of winter, I…

MARVELLOUS MAYFLIES

Wednesday, 16 May 2018

You will see them dancing above the water of rivers and ponds, not just in May but on any warm summer's day. Famous for their brief lives - some live as adults only for a few hours - they were one of the first winged insects, their fossils dating back over 300 million years, A vital food source for fish and other freshwater creatures, their presence is a marker of a clean, unpolluted environment.

COUNTING ON APRIL

Sunday, 29 April 2018

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Inspiration from the past: in conversation with John Ruskin

Having an April birthday, I tend to feel that this is 'my' month and last weekend's brief burst of summer saw us joining the hordes with the same idea for an afternoon in the deckchairs at The Orchard Tea Room. Sadly the weather doesn't last  although other anniversaries buoy the hopes. This Saturday Anglia Ruskin celebrated 25…

WORLD PARKINSON'S DAY #UNITE FOR PARKINSON'S

Wednesday, 11 April 2018

I couldn't really let World Parkinson's Day go by without a brief update. It's a day that's being marked and - well, celebrated? - yes, I think celebrated - across the world. For the third year, Florida's Tonya Walker has rolled out her #HeelsOnHeadUp social media campaign and I felt I had to contribute my photo (in tango shoes of course!) - you should be able to find it on twitter. There's also a…

DIGGING IN/DIGGING DEEP

Wednesday, 28 March 2018

Well that last stretch was a tough one! Heartfelt thanks to the most recent pledgers (and the movers & shakers: Andy, Francesca, Bob) who helped us inch our way over the halfway mark. I find myself thinking of the one marathon I completed, back in '84 - so almost exactly half my lifetime ago. Not the most encouraging comparison as I recall the second half began with a turn into the wind along the…

90 DAYS & COUNTING...

Monday, 12 March 2018

90 days in, I am aware that I ask a great deal of my friends. This from Parkinson's & the Tango Effect Chapter 10: 'Medicine': 

"As the last traces of summer warmth evaporated, I found myself embarrassed by my need – or was it neediness? I didn't know who or what to ask, or how or when. How late was too late? How much was greedy? How long before those closest to me felt the tug and chafe of me…

MARCH HARES, MORALE & MOMENTUM, MAGICAL THINKING

Thursday, 1 March 2018

I have been reading about the ‘mad’ March hare whose seasonal departure from its normal timidity into uncharacteristic spring frenzy – random vertical jumping and ‘boxing’ with rivals – has earned the creature its reputation. By association, the ‘Mad Hatter’s’ tea party (though Lewis Carroll never used the term) has perhaps cemented our view of the hare. Well, if the cap fits…

So, the good news…

THREE IDEAS FOR FEBRUARY

Wednesday, 31 January 2018

Writing 2

First, a MASSIVE thank you to all supporters so far! - to the 130+ who've pledged their support financially and helped us to an encouraging 40% of the target, as well as the creative thinkers, those who've posted blogs and articles, John for the photos and the tireless ones like Jack who have persisted with shares and tweets and generally helped to keep this small boat afloat. Also to tango DJs local…

Getting there!

Saturday, 6 January 2018

Well it's 25 days since the launch and, thanks to all who've pledged their support so far, Parkinson's & the Tango Effect is well on the way to achieving its target. I've been surprised and delighted by the way readers have got behind the project, by the generosity of friends and the interest of strangers. This probably shouldn't come as a surprise: the media are currently noisy with exercise regimes…

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