Latest updates

Alzheimer's month discount code: ALZ20

Thursday, 17 September 2020

Well, since the last update I have sailed through the last of the first year anniversaries. Nick's funeral (I wore celebratory emerald green and we played a lot of the music he loved) was on 12 September 2019. This year on the 12th, by chance, I was away for a splendid weekend on the Norfolk coast with elder son Lucas, his wife and adult daughters. We had a lot of fun and there was no time to brood…

Anniversaries

Wednesday, 26 August 2020

Last week marked the first anniversary of Nick's death. Here's a blog about it. http://susanelkin.co.uk/articles/a-whole-year/

Migraine and Alzheimer's

Sunday, 16 August 2020

For the first half of his life Nick suffered very debilitating migraines which sometimes knocked him out for a whole day a week. Could there be a connection between this and the later development of Alzheimer's? No one ever mentioned this or asked us about it.  New blog in support of The Alzheimer's Diaries; a love story. http://susanelkin.co.uk/articles/alzheimers-and-migraine/

Early symptom

Monday, 10 August 2020

New background blog. One day, 25 years ago Nick lost his sense of smell ... http://susanelkin.co.uk/articles/anosmia/

Bookshops

Saturday, 8 August 2020

I've been meaning to contact Crofton Books (in London, SE4) for a while. It's an impressive secondhand bookshop within Crofton Park Libary which is now run by volunteers. The owner, Jason, and I have been following each other on Twitter for some time. This week I droppped in to see him for a chat and a very pleasant experience it was too. I wanted to discuss two books with him - my Deptford teaching…

Blogs on my website

Monday, 3 August 2020

I have started an occasional blog which shares more background to The Alzheimer's Diaries: a love story including things such as how Nick and I first met, where the illness might have sprung from and so on. Here's the link: /http://susanelkin.co.uk/articles/category/life/alheimers-diaries-blogs/

As August arrives

Sunday, 2 August 2020

So here we are back in August. This time last year I was hunched and tensed, day after day , at a bedside in Lewisham hospital. it has to be said that, lockdown and loneliness aside, I am feeling far fitter and happier now than then. Of course I miss Nick acutely  but I don't miss the sad shadow of his former self that he had become by last August - or the agony of dealing with those final weeks.

Alzheimer's research

Saturday, 25 July 2020

Anyone who has ever encountered Alzheimer's - or any other form of dementia -  knows that this is no cure. It is stated bluntly by the professionals from day one. I presume that this truthfulness is a key part of some shared code of practice. 

So research is the only hope for the 850,000 people known to have dementia in the UK at present. About two thirds of that number have Alzheimer's. Numbers…

Widening the net

Friday, 17 July 2020

Funding for The Alzheimer's Diaries: a love story is now at 31%. One third funded  is in sight - thanks to all you generously supportive people. 

I've just started a new blog on my website which gives more information about the genesis of this project. Do share the link as widely as you can.http://susanelkin.co.uk/articles/how-did-it-all-start/

I had an email conversation with John Suchet this…

Anniversaries

Wednesday, 8 July 2020

Nickvancouverislandcanada2012

Any bereaved person will tell you that the first year is studded with stumbling blocks. Each memorable date or anniversary has to be confronted head on. And head butting can hurt.

I’m now nearly at the end of my first year of widowhood. Christmas, with fifty years of shared memories, was a bit tricky. And what would have been our 51st wedding anniversary fell six days after lockdown so I had…

A year ago ...

Friday, 3 July 2020

It is exactly a year ago today (3 July) that Nick was taken to hospital, having woken in the morning unable to stand. As it turned out, he went rapidly downhill from then on and never came home again. The date stands in my mind because a) it's our second granddaughter's birthday and b) somewhat inconveniently under the circumstances I'd booked the car for its annual service.

When I decided to publish…

Positive thinking

Monday, 22 June 2020

Nick confounded every medic he met.  He fitted none of the tentative profiles for Alzheimer's. He wasn't overweight and was physically fit and active all his life. He had never smoked, drank very little and was a dab hand at anything requiring mental alertness such as word games and quizzes. Even in his final weeks doctors seemed to find it hard to believe that he was simply dying of Alzheimer's and…

Nick's approval

Monday, 1 June 2020

When Nick, my husband, was diagnosed with Alzheimer's in 2017, I asked him if he'd mind if I blogged about his illness. He was a quiet, quite private sort of man and I fully expected him to be horrified. To my surprise he said: "Yes, why not? You'll do it well and it might help others".

In the event he loved it. I think it was the first time in his life he'd ever been the centre of attention. He…

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